{"id":1349,"date":"2025-08-19T17:09:27","date_gmt":"2025-08-19T07:39:27","guid":{"rendered":"https:\/\/blogs.flinders.edu.au\/caring-futures-institute\/?p=1349"},"modified":"2025-08-21T15:11:22","modified_gmt":"2025-08-21T05:41:22","slug":"caring-for-dementia-carers-in-a-language-everyone-understands","status":"publish","type":"post","link":"https:\/\/blogs.flinders.edu.au\/caring-futures-institute\/2025\/08\/19\/caring-for-dementia-carers-in-a-language-everyone-understands\/","title":{"rendered":"Caring for dementia carers in a language everyone understands"},"content":{"rendered":"<p>Who cares for those who take care of people living with dementia? Often, this taxing role is undertaken in Australia by carers born in other countries, from other cultures and who communicate in languages other than English \u2013 yet these people have the least resources available to help them cope with their difficult caring responsibilities.<\/p>\n<p><a href=\"https:\/\/researchnow.flinders.edu.au\/en\/persons\/lily-xiao-2\" target=\"_blank\" rel=\"noopener\">Professor Lily Xiao<\/a> leads a team at Flinders University\u2019s Caring Futures Institute that has been developing a crucial online tool that can provide better assistance for these people \u2013 so they can continue to provide the best care for people with dementia.<\/p>\n<figure id=\"attachment_1350\" aria-describedby=\"caption-attachment-1350\" style=\"width: 150px\" class=\"wp-caption aligncenter\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-1350 size-thumbnail\" src=\"https:\/\/blogs.flinders.edu.au\/caring-futures-institute\/wp-content\/uploads\/sites\/95\/2025\/08\/Lily-Xiao-150x150.jpg\" alt=\"\" width=\"150\" height=\"150\" srcset=\"https:\/\/blogs.flinders.edu.au\/caring-futures-institute\/wp-content\/uploads\/sites\/95\/2025\/08\/Lily-Xiao-150x150.jpg 150w, https:\/\/blogs.flinders.edu.au\/caring-futures-institute\/wp-content\/uploads\/sites\/95\/2025\/08\/Lily-Xiao-300x300.jpg 300w, https:\/\/blogs.flinders.edu.au\/caring-futures-institute\/wp-content\/uploads\/sites\/95\/2025\/08\/Lily-Xiao-1024x1024.jpg 1024w, https:\/\/blogs.flinders.edu.au\/caring-futures-institute\/wp-content\/uploads\/sites\/95\/2025\/08\/Lily-Xiao-768x768.jpg 768w, https:\/\/blogs.flinders.edu.au\/caring-futures-institute\/wp-content\/uploads\/sites\/95\/2025\/08\/Lily-Xiao-1536x1536.jpg 1536w, https:\/\/blogs.flinders.edu.au\/caring-futures-institute\/wp-content\/uploads\/sites\/95\/2025\/08\/Lily-Xiao-2048x2048.jpg 2048w\" sizes=\"auto, (max-width: 150px) 100vw, 150px\" \/><figcaption id=\"caption-attachment-1350\" class=\"wp-caption-text\">Professor Lily Xiao<\/figcaption><\/figure>\n<p>Over the past five years, the culturally-tailored iSupport model of care (CT-iSupport) for carers has been developed as a culturally tailored online information and support tool, co-designed by Flinders researchers in cooperation with aged care industry partners including the <a href=\"https:\/\/www.anhf.org.au\/en\/\" target=\"_blank\" rel=\"noopener\">Australian Nursing Home Foundation<\/a> (NSW), <a href=\"https:\/\/cass.org.au\/\" target=\"_blank\" rel=\"noopener\">Chinese Australian Services Society<\/a> (NSW), <a href=\"https:\/\/caassa.org.au\/\" target=\"_blank\" rel=\"noopener\">Community Access and Services<\/a> (SA), <a href=\"https:\/\/gwccservices.org\/\" target=\"_blank\" rel=\"noopener\">Multicultural Aged Care with Greek Welfare Centre<\/a> (SA), <a href=\"https:\/\/murraymalleeagedcareservices.com.au\/\" target=\"_blank\" rel=\"noopener\">Murray Mallee Aged Care Group<\/a> (SA), <a href=\"https:\/\/pronia.com.au\/\" target=\"_blank\" rel=\"noopener\">Pronia<\/a> (Victoria) and the <a href=\"https:\/\/www.united.org.au\/\">Spanish Latin American Welfare Centre<\/a> (Victoria).<\/p>\n<p>This vast project has been realised through funding support from 2022 NHMRC TCR,<\/p>\n<p>This vast project has been realised through funding support from 2022 <a href=\"https:\/\/www.nhmrc.gov.au\/funding\/targeted-calls-research\" target=\"_blank\" rel=\"noopener\">National Health and Medical Research Council Targeted Call for Research<\/a> (NHMRC TCR), <a href=\"https:\/\/www.australiachinafoundation.org.au\/\" target=\"_blank\" rel=\"noopener\">National Foundation for Australia-China Relations<\/a>, <a href=\"https:\/\/www.ariia.org.au\/\" target=\"_blank\" rel=\"noopener\">Aged Care Research &amp; Industry Innovation Australia (ARIIA)<\/a> and the <a href=\"https:\/\/www.health.gov.au\/our-work\/mrff\" target=\"_blank\" rel=\"noopener\">Medical Research Future Fund (MRFF)<\/a>.<\/p>\n<p>\u201cIt has important dual benefits \u2013 providing assistance for carers from Culturally and Linguistically Diverse (CALD) communities, and also significant benefits for older people with dementia who do not speak English well,\u201d says Professor Xiao.<\/p>\n<p>This model includes facilitator-enabled dementia care education using the World Health Organisation (WHO)-endorsed iSupport for dementia program, plus peer support and access to care services in the carer\u2019s preferred language and culture. There are also published versions of iSupport manuals in eight languages, which are free for carers to access and utilise.<\/p>\n<p>\u201cWe invited industry partners to submit real cases in dementia care, then we redeveloped these cases for education purposes so that carers and staff with lived experiences could review the case studies and co-create videos to simulate the case studies,\u201d says Professor Xiao. \u201cIt was an important breakthrough, because it was the first opportunity many of these people had to voice their opinions and have their ideas for improvement heard.<\/p>\n<p>\u201cThe co-design process also informed our team of the need to develop resources to enable coaching activities between iSupport facilitators and carers, to address challenges that carers face but are not included in the iSupport manuals.<\/p>\n<p>\u201cIt is a truly cost-effective way to connect this important training and information to carers.\u201d<\/p>\n<p>The research team has translated the model into care services with industry partners that provide community aged care services to people with dementia whose native language is Cantonese, \u00a0Mandarin, Greek, Indonesian, Italian, Spanish and Vietnamese.<\/p>\n<p>The research team has also been able to continue expanding the reach of the CT-iSupport model, even as it is being tested in the community. During the trial phase, the researchers learned of increasing demand for dementia support within the South Korean community based in Sydney, and so the CT-iSupport model will be expanded to also include the South Korean language and other languages that our community needs.<\/p>\n<p>\u201cIt is exciting to know that the CT-iSupport model is so strong that it can be quickly adapted and expanded to include other languages and cultural groups. It proves that international ramifications for this model are huge.\u201d<\/p>\n<p>The project is in its third and final stage, having developed the CT-iSupport model to include several different languages and cultural groups, and having completed tests with three Chinese-ethno-specific aged care organisations that co-invested in the trial \u2013 Australian Nursing Home Foundation, NSW; Chinese Australian Services Society, NSW and Chinese Welfare Services SA.<\/p>\n<p>More iSupport trials are being conducted with <a href=\"https:\/\/adelaidephn.com.au\/\" target=\"_blank\" rel=\"noopener\">Adelaide Primary Health Network<\/a>, <a href=\"https:\/\/www.carerssa.com.au\/\" target=\"_blank\" rel=\"noopener\">Carers SA<\/a>, <a href=\"https:\/\/chinesewelfareservices.org.au\/\" target=\"_blank\" rel=\"noopener\">Chinese Welfare Services SA<\/a>, <a href=\"https:\/\/www.benevolent.org.au\/\" target=\"_blank\" rel=\"noopener\">The Benevolent Society<\/a> (NSW) and<a href=\"https:\/\/www.merrihealth.org.au\/holstep-health\/\" target=\"_blank\" rel=\"noopener\"> Holstep Health<\/a> (Victoria).<\/p>\n<p>The program is now being rolled out nationally, with the CT-iSupport model being embedded into routine dementia care services delivered by aged care providers. It is hoped this phase will be completed by the end of 2026.<\/p>\n<p>Importantly, the model has clearly demonstrated positive impact on carers\u2019 quality of life, self-efficacy and mental health.<\/p>\n<p>\u201cCaring for people living with dementia can lead to physical and mental stress and social isolation. The carers are presented with great difficulties \u2013 having to provide for people with dementia who have lost their self-care abilities, from eating, dressing and washing, through to such important health concerns as infection and preventing falls,\u201d explains Professor Xiao.<\/p>\n<p>\u201cJust having a stronger support mechanism relieves stress for these carers, and the CT-iSupport model provides this by connecting carers with a peer group who speak their own language.<\/p>\n<p>\u201cOur research will also make a difference by reducing avoidable hospital admissions and emergency department use by people with dementia and their carers, improving their experience and also reducing costs and pressures on the health care system.\u201d<\/p>\n<p>CT-iSupport for dementia training manuals are available on the Flinders University site: <a href=\"https:\/\/fac.flinders.edu.au\/search?spc.page=1&amp;query=isupport\">https:\/\/fac.flinders.edu.au\/search?spc.page=1&amp;query=isupport<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Who cares for those who take care of people living with dementia? Often, this taxing role is undertaken in Australia by carers born in other countries, [&hellip;]<\/p>\n","protected":false},"author":6575,"featured_media":1351,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[3206],"tags":[],"class_list":["post-1349","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-quality-aged-care"],"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/blogs.flinders.edu.au\/caring-futures-institute\/wp-json\/wp\/v2\/posts\/1349","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blogs.flinders.edu.au\/caring-futures-institute\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blogs.flinders.edu.au\/caring-futures-institute\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blogs.flinders.edu.au\/caring-futures-institute\/wp-json\/wp\/v2\/users\/6575"}],"replies":[{"embeddable":true,"href":"https:\/\/blogs.flinders.edu.au\/caring-futures-institute\/wp-json\/wp\/v2\/comments?post=1349"}],"version-history":[{"count":0,"href":"https:\/\/blogs.flinders.edu.au\/caring-futures-institute\/wp-json\/wp\/v2\/posts\/1349\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/blogs.flinders.edu.au\/caring-futures-institute\/wp-json\/wp\/v2\/media\/1351"}],"wp:attachment":[{"href":"https:\/\/blogs.flinders.edu.au\/caring-futures-institute\/wp-json\/wp\/v2\/media?parent=1349"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blogs.flinders.edu.au\/caring-futures-institute\/wp-json\/wp\/v2\/categories?post=1349"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blogs.flinders.edu.au\/caring-futures-institute\/wp-json\/wp\/v2\/tags?post=1349"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}