$1.2m for endometriosis research

A Flinders University digital health team, including Personal Health Informatics Associate Professor Niranjan Bidargaddi, will support a new collaborative research project in South Australia to find answers and support women and girls living with endometriosis.

More than 700,000 Australian women and girls live with endometriosis, often with a delay between onset and diagnosis of 7-12 years.

There are major health, education, employment, social and economic consequences for these 1 in 10 women, including teenage girls, who live with regular, significant and undiagnosed pain.

Reduced participation in education, work and society has a personal and family impact, substantially costs the health system, and negatively impacts the economy.

Led by the University of Adelaide’s Robinson Research Institute, the project has been developed by the Australian endometriosis advocacy groups, clinicians, researchers and health care providers.

With input from patient groups, researchers and clinicians, the online platform will deliver awareness and education, and also aims to improve the lives of endometriosis sufferers by working directly with them.

Part of the Federal Government’s National Action Plan for Endometriosis, the resources will build a better understanding of what works and how others are managing the condition.

Better access to information, resources and engagement with research aims to improve treatments and understanding of an often misunderstood and crippling condition.

The project has been supported by funding of $1.2 million over three years, incorporating a range of experts from health informatics to biomedical and clinical research expertise who will collaborate with local support networks to run clinical trials and develop new research opportunities.

Further information will be provided through the endometriosis advocacy groups as the project progresses, including your opportunity to contribute to the development of this new platform.

Associate Professor Bidargaddi has developed several mobile and internet-based interventions for cancer, behavioural and sleep disorders, including personalised mental health platforms such as MINDtick  and the (AI2) Project

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