Written by Professor Gregory Crawford, Professor of Palliative Medicine, Domain Lead, Professionalism and Leadership, Adelaide Medical School, University of Adelaide

Should we be “Dying to Know” — or perhaps “Living to Know”?

As Australians live longer, we’re also navigating longer periods of decline in health. It’s estimated that up to 70% of people, along with their families and supporters, could benefit from palliative care during this time. That’s not just a statistic – it’s a call to action.

On the eve of Dying to Know Day, I had the honour of speaking at an event hosted by Walkerville Council, where we explored the role of palliative care and the importance of planning for our inevitable end of life. After a career dedicated to this field, I continue to be inspired by the world-class public services we have in Australia, the collaboration between the health and aged care sectors, and the deeply committed professionals who make it all work.

Think Upstream

Death can be sudden, yes – but more often, it’s a gradual process. Sometimes we miss the signs of decline in those we love. That’s why it’s so important to think upstream: not just about what happens at the very end, but about what matters most before we get there.

Palliative care isn’t just about dying – it’s about living well, even as our health changes. It’s about comfort, dignity, and choice. And it starts with a conversation.

Have the Conversation

This isn’t just about funerals, burials, or cremation. It’s about how you want to live when you need care.

Ask yourself:

• What treatments would I want – or never want?
• What matters most to me when I’m vulnerable?
• Who do I trust to speak for me if I can’t?

These are deeply personal questions, and they deserve thoughtful answers. Talk to your loved ones. Talk to your GP. Talk to the people who will walk alongside you. Your doctor can help you understand your options, and together you can make informed decisions that reflect your values.

Write It Down

Documenting your wishes helps guide your family and supporters when the time comes. It can guide your health care team. An Advance Care Directive is a powerful tool – it’s not set in stone, but it gives clarity and confidence to those who care for you. You can update it as your health and preferences evolve.

Appointing someone to speak on your behalf is just as important. Don’t assume your next of kin knows what you want – make it clear and share it.

It’s About the Journey

This isn’t just about death. It’s about the journey through ageing, illness, and change. It’s about living every day that remains in a way that feels true to you.

Let’s shift the narrative. Let’s talk about living well, even as we prepare for the end. Let’s embrace the reality of our impermanence – not with fear, but with intention.

With Gratitude

A heartfelt thank you to our supporters:

• Walkerville Council
• Flinders University Research Institute for Palliative Care, Death and Dying
• Palliative Care SA and the palliative care services
• Northern Community Health and Research Foundation

Together, we’re building a future where conversations about care, dignity, and death are not just accepted – but embraced.