Flinders University is deeply saddened by the passing of Dr Ellen Fraser-Barbour, a national disability advocate and Flinders alumna who generated enduring impact in teaching, research and advancing human rights. After completing a Bachelor of Disability and Development Education (Hons) (University Medal), Ellen graduated with a Doctor of Philosophy in 2024.

As Research and Policy Leader for JFA Purple Orange, Ellen shared her passion and expertise throughout government and industry, and in the community. She contributed to many groups and organisations, including the SA Disability Ministerial Council, the National Disability Research Partnership Working Party, and South Australia’s Health Performance Council, where she helped lead an audit into the experiences of people with disability in the state’s health system.

JFA Purple Orange CEO, Tracey Wallace said Ellen had made “an incredible impact”.

“Ellen’s contribution to our work, and the disability rights movement more broadly is immeasurable, and the disability community is better for it,” said Tracey.

“The legacy she leaves will guide our advocacy into the future and we consider it a privilege to further the important work she started.”

Ellen held teaching and research positions at Flinders. Her thinking, advice and approach to reframing how disability and inclusion are taught here at Flinders have left a legacy for future generations of students.

“Ellen was an exceptional scholar,” said Professor Sally Robinson of the Disability and Community Inclusion team.

“Her PhD used a highly original approach to demonstrate how people with disability in shared accommodation negotiate safety, belonging and a sense of control over their lives. One of her deepest skills, though, was in translating academic knowledge for practical change.”

“Ellen was a rare person who drove change in practice, policy and academic areas. Her work was deeply innovative, and she delivered powerful messages with humour and positivity. Sometimes people did not realise how deep the message was until long after they had implemented the change – her mild manner was deceptive!”

Ellen leaves an enduring legacy of reform, reframing how policy makers think about inclusion, and has set a high bar for future advocates across all communities. Her passion and presence will be deeply missed.