Written by Dr Lenore de la Perrelle, Research Fellow, End of Life Directions for Aged Care (ELDAC)
On a chilly winter evening in Adelaide, more than 60 people gathered for a heartfelt and enlightening conversation with Professor Greg Crawford, one of Australia’s leading voices in palliative care. The event was a precursor to Dying to Know Day and was more than just a talk. It was a space where curiosity met compassion, and where people – health professionals, carers, and community members alike – came together to ask the questions that matter most when it comes to end-of-life care.
Questions That Matter
The event drew thoughtful questions, each one reflecting the deep desire to understand how best to care for us and for those we love as life draws to a close. Some of the most common questions included:
- What’s the difference between palliative care and end-of-life care?
- How does palliative care differ from Voluntary Assisted Dying?
- Where can you get palliative care?
- Can aged care facilities provide palliative care?
- What happens if someone doesn’t have a will or an advance care plan?
These questions highlight a shared need for clarity and guidance. Whether you’re a health worker supporting patients or a family member caring for a loved one, understanding the language and logistics of palliative care is essential.
Navigating the Journey
For carers and health professionals, the conversation often turns to navigating services – knowing where to go, who to ask, and how to advocate for the best possible care. The ‘what’, ‘how’, and ‘where’ questions are not just practical – they’re deeply personal. They help us see that end-of-life care isn’t just a medical issue; it’s a human one.
But perhaps the hardest questions are the ones we ask ourselves:
- What kind of care do I want when my health declines?
- What matters most to me in my final days?
- Who do I trust to speak for me if I can’t speak for myself?
The Power of Conversation
Professor Crawford gently reminded us that the most important step is starting the conversation. Talk to your doctor. Talk to your family. Talk to your close friends and supporters. These conversations – though sometimes difficult – are vital.
They help us identify our preferences, values, and wishes. They ensure that when the time comes, our care reflects who we are and what we hold dear. And they empower those around us to advocate for us with confidence and love.
A Shared Responsibility
Whether you’re a nurse, a GP, a social worker, or simply someone who wants to understand more, talking about care at the end of life is about dignity, choice, and compassion. It’s about making sure no one is unheard at the end of life.
Dr Lenore de la Perrelle
Research Fellow, ELDAC Project